Thursday, May 27, 2010

A week and normal approaches

I actually feel human again. Its been basically a week and that seems to be what the last round did. A week o misery. I hope that the benefits start taking off. I have already noticed that I feel more balanced when I walk but won't know just how much better until vacation (in just another week!) and all of that activity. So far, so good.

Monday, May 24, 2010

Yesterday fight, today flight

Side effects can be bizzarre. At least that is the story I'm sticking
to. Yesterday I felt like a wookiee and wanted to tear everyone's arms
off. Today I'm so tired I just want to sit and not move. Let the
world go by. I know this too will pass but it is odd indeed.

Sunday, May 23, 2010

Side effects after last infusion

The third and last bag was in last night. The bad taste has not been
nearly as bad as the first time. I don't know if that means it isn't
going to work as well this time or I'm just taking it better this
time. I know that I have been more on edge today. I need to go back
and re-read last time but my dexterity in my hands. They are very weak
and holding a coffee cup is difficult at best. I spilled my vitamins
this morning because I was so weak. I don't think this will last but I
want to be sensitive to it all and write it down. It is certainly nice
to have the iv out of my arm.

Friday, May 21, 2010


Started my infusion last night. Three days, 3 grams, same side-effects (at least so far). Happy to get this done before vacation. Kept me up last night as expected. Woke at 3 and couldn't get back. That's ok, I got some WOW played :). More after tonights bag o goodness...

Tuesday, May 11, 2010

Drug Study

Well, I have decided to stop taking Avonex. It is just too much for me. To that end, I had a conversation with the drug study people and they say I am in once I wash out. I should start the real process around August. I think it is two weeks after the first visit before I get my meds, but basically it is a done deal. I'll keep everyone informed but for now, I'm zero meds (not even Ampyra). Well, I'm still taking my asthma stuff, but nothing for MS.