Friday, April 2, 2010

Changes in shot timing seem to have little effect

It has been a few weeks since my last pots and I have tried my shots in the morning, evening, small and larger doses of Ibuprofen and little change takes place. Certainly more medication has a better result for some symptoms (fever) but my fatigue the next day is still crazy and I feel terrible. This morning was a prime example of how bad I can feel when waking up. Felt absolutely horrible, fever, barely enough energy to stand in the shower; I nearly fell down twice. Getting dressed as an adventure in that I normally sit, but just raising my arms to put my shirt on took a lot of effort.

Now I'm at work, have had two cups of coffee and the world is a little better. Thankfully I can sit here and I don't have to be up and around.

I met with my neurologist about two weeks ago now and he tends to agree with Dr. M and me that the Avonex is most likely depressing my immune system. I am looking into getting in a drug study because of my side-effects. It is still up in the air as far as approval, but they are verifying that I qualify. I may start LDN (low-dose Naltrexone) as I have a prescription for it now, but have not yet had it filled (it has to be compounded). Others have touted its benefits but it is purely anecdotal. I'd like to see what it does for me.

So far I have had sponsorships of over $1000 for the 1020 MS Walk. I hope to get over $1500. I have 3 more weeks to get donations in. Please consider donating or walking with us.

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